A Visit To The Dog Toy Store

Daisy's purple toy finally did bite the dust. It was barbell shaped and shehas held onto one of the balls on the end. Despite the fact we got her a new toy, she still ONLY plays with what is left of purple toy. BUT here are some photos of her playing with the new one...(we put treats in it!)

Hold The Lovenox Please!

So last night I coughed up just a tiny bit of blood, less than a tsp so we held the lovenox. I won't complain about that! My belly is a walking bruise. But I will start it back up tonight, but the shot break was nice I must say.

Please pray that I continue to stay well and healthy and these blood spells stay to a minimum.

As Dori would say...

"Just keep waiting. just keep waiting, just keep waiting."

(the fish from Nemo).

Check out the Update Daily Press did!

Back in August the Daily Press wrote an article on me. Here is an update that was written!!

http://weblogs.dailypress.com/health/peninsula-health-notes/2010/10/update_woman_awaits_multiple_l_1.html

Signed My Life Away Today!

I was discharged from Duke today!! I was also listed today for my organs!! Exciting & somewhat scary at the same time. My LAS (Lung Allocation Score) is low, but I was told that I may not wait that long because I am the only one of my blood type on the list.

I have an appointment in the afternoon & then I will head over the the Center for Living to begin Pulmonary Rehab again.

If you would please, pray for the donor's family, the doctors and for my family & I.

Meet Lincoln & Leopold

Meet Lincoln and Leopold. Can you tell what they are? They were a gift to me from my sister's best friend. She is quite talented, as you can tell, she can make almot anything!! I love them, they are so cool! Thanks so much Shananan!!


Lincoln & Leopold and the nebs


Happy Lungs


Lincoln & Leopold and the Vest

Friends

Friends

Just call me a "Frequent Flyer"

So...I've landed myself back in Duke hospital due to some more blood episodes. But on a good note, again not nearly as much as before, only 2 TBP..phew. The docs wanted me to come in just for observation. So I came in thru the ER. Well its day two and I'm still here somewhat discouraged because there has been talk about keeping me here until my TX! I don't want that, I love the center for living!! The delimma is: aspargillis in my lungs, clots in my arms and my liver not being up to par to handle the meds.

I'll explain: One, my cultures have shown that I have aspargillis in my lungs. The medication to treat aspargillis is VERY hard on the liver and I have been on it before but was taken off it because my liver enzymes shot thru the roof. There is another med that can treat aspargillis but it is IV only, which leads me to the next road block--IV access. I don't have a central line in because of the cots in my arms. Both PICC lines had to be pulled due to clots. A port is not an option because of the TX surgery, docs don't want anything in the chest area. So the plan is to look to see if the clots are gone (the docs think not, its only been 2 weeks--but God can do anything!), if clots are not gone docs want to do a MRV which is an MRI that looks at blood vessels. The problem with that is I have a shunt inside me with surgical metal clips and when it was put in the docs told me I cannot have an MRI. So, yet another road block!

Please keep me in your prayers. I will keep you posted.