So...I've landed myself back in Duke hospital due to some more blood episodes. But on a good note, again not nearly as much as before, only 2 TBP..phew. The docs wanted me to come in just for observation. So I came in thru the ER. Well its day two and I'm still here somewhat discouraged because there has been talk about keeping me here until my TX! I don't want that, I love the center for living!! The delimma is: aspargillis in my lungs, clots in my arms and my liver not being up to par to handle the meds.
I'll explain: One, my cultures have shown that I have aspargillis in my lungs. The medication to treat aspargillis is VERY hard on the liver and I have been on it before but was taken off it because my liver enzymes shot thru the roof. There is another med that can treat aspargillis but it is IV only, which leads me to the next road block--IV access. I don't have a central line in because of the cots in my arms. Both PICC lines had to be pulled due to clots. A port is not an option because of the TX surgery, docs don't want anything in the chest area. So the plan is to look to see if the clots are gone (the docs think not, its only been 2 weeks--but God can do anything!), if clots are not gone docs want to do a MRV which is an MRI that looks at blood vessels. The problem with that is I have a shunt inside me with surgical metal clips and when it was put in the docs told me I cannot have an MRI. So, yet another road block!
Please keep me in your prayers. I will keep you posted.