So I'm back in Duke Hospital. Coughed up some more blood Monday night and it was more than my baseline, so I went to the ER to get it checked out. They admitted me to observe me and the original plan was going to be to let me go home today (Tuesday), but then Doc stepped in and decided he wants to embolize me again to reduce the risk of massive bleeding in the future. So, tomorrow I will have the embolization and the plan is to watch me for 24 hours and then send me home if all goes well.
Please pray for the procedure to go well and for guidence for the doc's and nurses hands.
Thanks and love you all! Keep you posted. :)
Tuesday, November 30, 2010
Sunday, November 28, 2010
Thanksgiving
Things I look forward to doing after Transplant...
So after TX I will be able to do these again!! Can't wait!
1. Walk and talk at the same time (w/o hacking)
2. Laugh without starting a hacking fit
3. Shower without a leash (oxygen tubing)
4. Get dressed without my lips turning blue
5. Yell, shout and scream without a hacking fit
6. Exercise, any kind I want!
7. Walk up stairs again
8. Shop with two free hands! Not tanks to drag behind me
9. Go out and run errands without worrying about running out of oxygen (life gas) and packing extra tanks.
10. Dance and breathe
11. Sing without hacking
12. Play/walk Daisy
13. Work
14. Cook and bake without feeling wiped afterwords
15. Gain weight
16. Play sports
17. Put on make-up without taking off oxygen tubing
18. Be able to move freely through the house without leash (oxygen tube)
19. Not get up so early to make time for 90 minutes of treatments
20. Boogie board and skim board on the beach!! :)
I'm not being bitter here at all, this was just a fun list I'd been thinking over in my head. Dad and I joke alot about these things. Its the simple things that make the most difference and I look forward very much to my call and my new organs so I can do all these activities and more once again. But I am very grateful for what I have right now.
1. Walk and talk at the same time (w/o hacking)
2. Laugh without starting a hacking fit
3. Shower without a leash (oxygen tubing)
4. Get dressed without my lips turning blue
5. Yell, shout and scream without a hacking fit
6. Exercise, any kind I want!
7. Walk up stairs again
8. Shop with two free hands! Not tanks to drag behind me
9. Go out and run errands without worrying about running out of oxygen (life gas) and packing extra tanks.
10. Dance and breathe
11. Sing without hacking
12. Play/walk Daisy
13. Work
14. Cook and bake without feeling wiped afterwords
15. Gain weight
16. Play sports
17. Put on make-up without taking off oxygen tubing
18. Be able to move freely through the house without leash (oxygen tube)
19. Not get up so early to make time for 90 minutes of treatments
20. Boogie board and skim board on the beach!! :)
I'm not being bitter here at all, this was just a fun list I'd been thinking over in my head. Dad and I joke alot about these things. Its the simple things that make the most difference and I look forward very much to my call and my new organs so I can do all these activities and more once again. But I am very grateful for what I have right now.
Wednesday, November 24, 2010
Bruised Belly Bliss!
So I found out today that I no longer have to stay on Lovenox...that cursed shot of a blood thinner!! My clots have shrunk down to a small enough size that the body should be able to dissolve them. I am so happy, no more shots in my belly! Thank you God!
Still a waiting that special phone call :)
Thanks for all the prayers still!
Still a waiting that special phone call :)
Thanks for all the prayers still!
Sunday, November 14, 2010
Pulmonary Rehab Graduate
WooHoo I got a certificate!
One of my caregivers :) Daddy (he is also proud)
This is late, but I've been without internet for a while, but I graduated Pulmonary Rehab. All that means is I completed 23 days of rehab. I still continue to go workout everyday for 2-3 hours.
Thanks for all the prayers, still doing well, just waiting for that phone call!
Time to celebrate!
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